Australian Commission on Safety and Quality in Health Care (ACSQHC) 2013, Consumers, the health system and health literacy: taking action to improve safety and quality, Consultation Paper, ACSQHC, Sydney.

Australian Commission on Safety and Quality in Health Care (ACSQHC) 2004, Standard for credentialing and defining the scope of clinical practice, ACSQHC, Sydney.

Australian Commission on Safety and Quality in Health Care (ACSQHC) 2011, National Safety and Quality Health Service Standards, ACSQHC, Sydney, viewed March 2015,

<http://www.safetyandquality.gov.au/wp-content/uploads/2011/09/NSQHS-Standards-Sept-2012.pdf>.

Australian Health Ministers’ Advisory Council (AHMAC) 2011, A national framework for advance care directives, AHMAC, Canberra, viewed October 2013, <www.ahmac. gov.au>.

Australian Institute of Health and Welfare (AIHW) 2014, Cancer in Australia: an overview 2014.

Cancer series No. 90. Cat. no. CAN 88, AIHW, Canberra.

Bhangu A, Beard J, Grimer R 2004, ‘Should soft tissue sarcomas be treated at a specialist centre?’ Sarcoma, vol. 8, no. 1, pp 1–6, viewed January 2017, <http://www.ncbi.nlm.nih.gov/pubmed/18521386>.

Brandes K, Linn AJ, Butow PN, van Weert JC 2014, ‘The characteristics and effectiveness of Question Prompt List interventions in oncology: a systematic review of the literature’, Psychooncology, viewed September 2014, <http://www.ncbi.nlm.nih.gov/pubmed/25082386>.

Cancer Australia 2010, Complementary and alternative therapies, Cancer Australia, Surry Hills, NSW, viewed October 2013 < http://canceraustralia.gov.au/publications-and-resources/position-statements/complementary-and-alternative-therapies>.

Cancer Australia 2013, Report to the nation: Cancer in Aboriginal and Torres Strait Islander peoples of Australia, Cancer Australia, Surry Hills.

Cancer Australia 2015, National Aboriginal and Torres Strait Islander Cancer Framework, Cancer Australia, Surry Hills.

Cancer Council Australia Sarcoma Guidelines Working Party 2014, Clinical practice guidelines for the management of adult onset sarcoma, Cancer Council Australia, viewed January 2017,

<http://wiki.cancer.org.au/australiawiki/index.php?oldid=138276> and <http://wiki.cancer.org.au/australia/Guidelines:Sarcoma>.

Clinical Oncology Society of Australia (COSA) 2011, Psychosocial management of AYAs diagnosed with cancer: guidance for health professionals, COSA, Sydney, viewed January 2012, <http://wiki.cancer.org.au/australia/COSA:Psychosocial_management_of_AYA_cancer_patients>.

Clinical Oncology Society of Australia (COSA) 2013, ‘Special Issue: COSA’s 40th Annual Scientific Meeting, Cancer Care Coming of Age, 12–14 November 2013’, Adelaide Convention Centre, Asia-Pacific Journal of Clinical Oncology, vol. 9, no. 3, pp. 61–98.

Davis LE, Janeway KA, Weiss AR, Chen YE, Scharschmidt TJ, Krailo M, et al. 2017, ‘Clinical trial enrollment of adolescents and young adults with sarcoma’, Cancer, no. 123, pp. 3434–3440.

Department of Health 2007a, Patient management frameworks, State Government of Victoria, Melbourne.

Department of Health 2007b, Achieving best practice cancer care: a guide for implementing multidisciplinary care, State Government of Victoria, Melbourne.

Department of Health 2007c, Linking cancer care: a guide for implementing coordinated cancer care, State Government of Victoria, Melbourne.

Department of Health 2009, Cultural responsiveness framework: guidelines for Victorian health service.

ESMO 2014a, European Sarcoma Network Working Group, Bone Sarcomas: ESMO Clinical Practice Guidelines, Annals Oncology (2014) 25 (suppl 3): iii113-iii123, viewed January 2017, <http://www.esmo.org/Guidelines/Sarcoma-and-GIST/Bone-Sarcomas>.

ESMO 2014b, European Sarcoma Network Working Group, Soft Tissue and Visceral Sarcomas: ESMO Clinical Practice Guidelines, Annals Oncology (2014) 25 (suppl 3): iii102- iii112, viewed January 2017, <http://www.esmo. org/Guidelines/Sarcoma-and-GIST/Soft-Tissue- and-Visceral-Sarcomas>.

Ferrari A, Thomas D, Franklin A, Hayes-Lattin B , Mascarin M, van der Graaf W, et al. 2010, ‘Starting an adolescent and young adult program: some success stories and some obstacles to overcome’, Journal of Clinical Oncology, vol. 28, no. 32, pp. 4850–4857.

Fitch M 2000, ‘Supportive care for cancer patients’, Hospital Quarterly, vol. 3, no. 4, pp. 39–46.

Gutierrez JC, Perez EA, Moffat FL, Livingstone AS, Franceschi D, Koniaris LG 2007, ‘Should soft tissue sarcomas be treated at high-volume centers? An analysis of 4205 patients’, Annals of Surgery, vol. 245, no.6, pp. 952–958.

Haines IE 2011, ‘Managing patients with advanced cancer: the benefits of early referral for palliative care’, Medical Journal of Australia, vol. 194, no. 3, pp. 107–108.

Herzog CE 2005, ‘Overview of sarcomas in the adolescent and young adult population’, Journal of Pediatric Hematology/Oncology., vol. 27, no. 4, pp. 215–218.

Hewitt M, Greenfield S, Stovall E 2006, From cancer patient to cancer survivor: lost in transition, National Academies Press, Washington.

Higginson IJ, Evans CJ 2010, ‘What is the evidence that palliative care teams improve outcomes for cancer patients and their families’, Cancer Journal, vol. 16, no. 5, pp. 423–435.

Hudson P, Trauer T, Kelly B, O’Connor M, Thomas K, Zordan R, et al. 2014, ‘Reducing the psychological distress of family caregivers of home based palliative care patients: longer term effects from a randomised controlled trial’, Psycho-Oncology, vol. 24, no. 1, pp. 19–24.

National Breast Cancer Centre (NBCC), National Cancer Control Initiative (NCCI) 2003, Clinical practice guidelines for the psychosocial care of adults with cancer, NBCC, Camperdown.

National Cancer Institute (NCI), US Department of Health and Human Services (USDHHS) 2006, Cancer epidemiology in older adolescents and young adults 15 to 29 years of age, including SEER incidence and survival: 1975–2000, National Cancer Institute, National Institutes of Health, Bethesda.

National Cancer Survivorship Initiative (NCSI) 2015, Stratified pathways of care, NHS England.

National Comprehensive Cancer Network (NCCN) 2016a, NCCN Clinical practice guidelines in oncology. Soft tissue sarcoma, version 1.

National Comprehensive Cancer Network (NCCN) 2016b, NCCN Clinical practice guidelines in oncology. Bone cancer, version 2.

National Institute for Clinical Excellence (NICE) 2004, Guidance on cancer service – improving supportive and palliative care for adults with cancer, NICE, London, viewed October 2013, <http://guidance.nice.org.uk/CSGSP>.

Palliative Care Australia 2005, Standards for providing quality palliative care for all Australians (4th edition), Palliative Care Australia, Deakin, viewed October 2013, <www.palliativecare.org.au/Standards/Thenationalstandards.aspX>.

Peppercorn J, Weeks J, Cook F, Joffe S 2004, ‘Comparison of outcomes in cancer patients treated within and outside clinical trials: conceptual framework and structured review’, Lancet, no. 363, pp. 263–270.

Pisters P, Weiss M, Maki R, Chandrajit P 2016, Soft tissue sarcomas, Cancer Network, viewed February 2016, <http://www.cancernetwork.com/cancer-management/soft-tissue-sarcomas>.

Pitkethly M, Macqillivray S, Ryan R 2008, ‘Recordings of summaries of consultations for people with cancer’, Cochrane Database of Systematic Reviews, vol. 3, July.

Robotin MC, George J, Supramaniam R, Sitas F, Penman A 2008, ‘Preventing primary liver cancer: how well are we faring towards a national hepatitis B strategy?’, Medical Journal of Australia, vol. 188, no. 6, pp. 363–365.

Sampo MM, Ronty M, Tarkkanen M, Tukiainen EJ, Bohling TO, Blomqvist CP 2012, ‘Soft tissue sarcoma – a population-based, nationwide study with special emphasis on local control’ Acta Oncologica, 51, pp. 706 – 712.

Silver JK, Baima J 2013, ‘Cancer prehabilitation: an opportunity to decrease treatment-related morbidity, increase cancer treatment options, and improve physical and psychological health outcomes’, American Journal of Physical Medicine and Rehabilitation, vol. 92, no. 8, pp. 715–727.

Sjoquist K, Zalcberg J 2013, ‘Clinical trials – advancing cancer care’, Cancer Forum, vol. 37, no. 1, viewed October 2012, <www.cancerforum.org.au/Issues/2013/March/Forum/Clinical_trials.htm>.

Smith A, Bellizzi K, Keegan T, Zebrack B, Chen V, Neale A, et al. 2013, ‘Health-related quality of life of adolescent and young adult patients with cancer in the United States: The Adolescent and Young Adult Health Outcomes and Patient Experience Study’, Journal of Clinical Oncology, vol. 31, no. 17, pp. 2136–2145.

Smith S, Case L, Waterhouse K, Pettitt N, Beddard L, Oldham J, et al. 2012, A blueprint of care for teenagers and young adults with cancer, Teenage Cancer Trust, London.

Steer B, Marx G, Singhal N, McJannett M, Goldstein D, Prowse R 2009, ‘Cancer in older people: a tale of two disciplines’, Internal Medicine Journal, vol. 39, no. 11, pp. 771–775.

Stiller C, Passmore S, Kroll M, Brownbill P, Wallis J, Craft A 2006, ‘Patterns of care and survival for patients aged under 40 years with bone sarcoma in Britain, 1980–1994’, British Journal of Cancer, vol. 94, no. 1, pp. 22–29.

Temel JS, Greer JA, Muzikansky A, Gallagher ER, Admane S, Jackson VA 2010, ‘Early palliative care for patients with non-metastatic non-small cell lung cancer’, New England Journal of Medicine, vol. 363, no. 8, pp. 733–742.

Zimmermann C, Swami N, Krzyzanowska M, Hannon B, Leighly N, Oza A, et al. 2014, ‘Early palliative care for patients with advanced cancer: a cluster-randomised controlled trial’, Lancet, vol. 383, no. 9930, pp. 1721–1730.