About this OCP

We acknowledge the Traditional Owners of Country throughout Australia and their continuing connection to the land, sea and community. We pay our respects to them and their cultures and to Elders past, present and emerging.

This work is available from the Leukaemia Foundation website and from the Cancer Council website.

This edition published in October 2021. ISBN: 978-0-6453299-5-7

Leukaemia Foundation and Australian Government Department of Health 2021, Optimal care pathway for people with low-grade lymphomas, 1st edn, Leukaemia Foundation of Australia.

Enquiries about this publication can be sent to bloodcancerpartnerships@leukaemia.org.au.

Our thanks to the following health professionals, consumer representatives, stakeholders and organisations consulted in developing this optimal care pathway.

Professor Judith Trotman (Co Chair), Haematologist, Concord Repatriation General Hospital, University of Sydney

Dr Nicole Wong Doo (Co Chair), Haematologist, Concord Repatriation and General Hospital, University of Sydney

Rebecca Beck, Lymphoma Care Nurse

Associate Professor Belinda A Campbell, Radiation Oncologist, Peter MacCallum Cancer Centre and University of Melbourne

Associate Professor Tara Cochrane, Haematologist, Gold Coast University Hospital, Southport, Queensland, Griffiths University Queensland

Serg Duchini, Consumer Representative, Chair, Lymphoma Australia

Associate Professor Kenneth Lee, Anatomical Pathologist, NSW Health Pathology, Concord Repatriation General Hospital, University of Sydney Medical School

Dr Robert Menz, General Practitioner, The Royal Australian College of General Practitioners

Sharon Millman, Chief Executive Officer, Lymphoma Australia

Dr Anthoulla Mohamudally, Palliative Care Physician, Royal Prince Alfred Hospital, Sydney

Professor Stephen Opat, Haematologist, Monash Health, Clinical Professor Monash University, Australasian Lymphoma and Related Disease Registry

Dr Emma Palfreyman, Haematologist, Royal Darwin Hospital

Kerry Wagland, Registered Psychologist, Headway Health, ICON Cancer Centre

Associate Professor Christina Brown, Haematologist, Royal Prince Alfred Hospital

Professor Chan Cheah, Haematologist, Sir Charles Gardiner Hospital, Pathwest,

Linear Clinical Research, Clinical Professor

of Haematology, University of Western Australia, Blood Cancer Research WA, Australasian Lymphoma Alliance

Clinical Associate Professor Anna Johnston, Haematologist, Royal Hobart Hospital, University of Tasmania

Dr Matthew Ku, Haematologist and Lymphoma Lead, St Vincent’s Hospital, University of Melbourne

Medical colleges, peak organisations and government representatives

Associate Professor Peter Mollee (Chair), Haematologist Princess Alexandra Hospital, Australasian Leukaemia and Lymphoma Group, Associate Professor, University of Queensland

Australian Capital Territory Health Allied Health Professions Australia

Australian and New Zealand Children’s Haematology/Oncology Group

Australia and New Zealand Transplant and Cellular Therapies

Australasian Association of Nuclear Medicine Specialists

Australasian College of Emergency Medicine Australasian Leukaemia & Lymphoma Group

Australian and New Zealand Society of Palliative Care

Australian College of Nursing

Australian College of Rural and Remote Medicine Australian Government Department of Health and Ageing Australian Medical Association

Beyond Blue Cancer Australia

Cancer Council of Australia Cancer Council Victoria Cancer Institute NSW

Cancer Nurses Society of Australia Canteen

Clinical Oncology Society of Australia

Haematology Society of Australia & New Zealand

Launceston General Hospital Leukaemia Foundation Lymphoma Australia

Medical Oncology Group of Australia Myeloma Australia

Northern Territory Department of Health Palliative Care Australia

Private Cancer Physicians of Australia Queensland Health

Rare Cancers Australia Redkite

Royal Australasian College of Physicians

Royal Australian and New Zealand College of Radiologists

Royal College of Pathologists of Australasia South Australia Health

Tasmanian Department of Health and Human Services

The Royal Australian College of General Practitioners

Victorian Department of Health

Western Australia Cancer and Palliative Care Network

Dr Caroline M Bateman, Paediatric Haematologist and Oncologist, Cancer Centre for Children, The Children’s Hospital at Westmead

Julia Brancato, Optimal Care Pathways Project Coordinator, Cancer Council Victoria

Dr Peter Diamond, Project Secretariat, Leukaemia Foundation

Associate Professor Michael Dickinson, Haematologist, Lymphoma Australia, Peter MacCallum Cancer Centre, Royal Melbourne Hospital, University of Melbourne

Associate Professor Anoop Enjeti, Haematologist, John Hunter Hospital, Senior Staff Haematologist, Calvary Mater Hospital, Conjoint Associate Professor, University of Newcastle

Emily Forrest, Project Secretariat, Leukaemia Foundation

Fiona Haigh, Project Secretariat, Leukaemia Foundation

Deborah Henderson, Consumer Representative

Professor Tim Hughes, Haematologist, South Australian Health and Medical Research Institute (SAHMRI), University of Adelaide, Royal Adelaide Hospital

Professor Steven Lane, Haematologist, Royal Brisbane and Women’s Hospital, QIMR

Berghofer Medical Research Institute, University of Queensland

Caroline Nehill, Director National Cancer Control, Cancer Australia

Professor H. Miles Prince AM, Haematologist, Epworth Healthcare and Haematologist

Peter MacCallum Cancer Centre

Professor Hang Quach, Haematologist, University of Melbourne, St. Vincent’s Hospital Melbourne

Catriona Rafael, Project Secretariat, Leukaemia Foundation

Professor Andrew Roberts AM, Haematologist and Bone Marrow Transplant Physician, Royal Melbourne Hospital, Peter MacCallum Cancer Centre, University of Melbourne, Walter and Eliza Hall Institute

Professor John Seymour AM, Haematologist, Peter MacCallum Cancer Centre, Royal Melbourne Hospital, University of Melbourne

Delaine Smith, Chief Executive Officer, Australasian Leukaemia and Lymphoma Group

Professor Judith Trotman, Haematologist, Concord Repatriation General Hospital, University of Sydney

Megan Varlow, Director Cancer Control Policy, Cancer Council Australia

Dr Nicole Wong Doo, Haematologist, Concord Repatriation and General Hospital, University of Sydney

Our thanks also to the Blood Cancer Taskforce, which recommended the development of optimal care pathways for all the major blood cancer subtypes as part of the National Strategic Action Plan for Blood Cancer (2020). The National Action Plan was commissioned by the Federal Government and developed by the Blood Cancer Taskforce, with support from the Leukaemia Foundation.

Not all patients with lgl require ongoing input from a multidisciplinary team. Where required, the multidisciplinary team may include the following members:

  • care coordinator (as determined by multidisciplinary team members)*
  • haematologist*
  • infectious diseases physician*
  • nurse (with appropriate expertise or under the supervision of nurses with appropriate expertise)*
  • pathologist including pathologist with molecular genetic expertise*
  • pharmacist*
  • Aboriginal health practitioner, Indigenous liaison officer or remote general practitioner
  • fertility specialist
  • spiritual/pastoral care
  • clinical trials coordinator
  • dentist
  • dietitian
  • exercise physiologist
  • general practitioner
  • genetic counsellor
  • geriatrician
  • nuclear medicine physician
  • occupational therapist
  • palliative care specialist
  • physiotherapist
  • psychiatrist
  • psychologist
  • radiation oncologist
  • radiologist/imaging specialists
  • social worker
  • spiritual/pastoral

* Denotes core members. Core members of the multidisciplinary team are expected to attend most multidisciplinary team meetings either in person or remotely.