See validated screening tools mentioned in Principle 4 ‘Supportive care’. Additionally, the ‘Cancer Survivors Unmet Needs (CaSun)’ is another validated screening tool that may help health professionals to identify the unmet needs of patients during survivorship.

A number of specific challenges and needs may arise for cancer survivors, carers and families:

• financial and employment issues (e.g. loss of income and assistance with returning to education programs/work, and the cost of treatment, travel and accommodation)
• appointing a substitute decision-maker and completing an advance care directive
• legal issues such as completing a

Supportive therapies may be necessary for CAYA with acute leukaemia, particularly due to the risk of cardiotoxicity and secondarily to using anthracyclines.

Late complications specifically related to CAYA acute leukaemia may include:

• deficits in neurocognitive functioning, particularly with CNS-directed therapy
• impaired cardiac function due to anthracycline chemotherapy
• neuropathy
• risk of obesity and metabolic syndrome, particularly in those patients treated with cranial

All patients who have been treated for leukaemia should participate in a survivorship program for at least three years after completing treatment.

Increased surveillance and monitoring are necessary for those who have undergone a transplant due to the increased toxicities of therapy, particularly during conditioning and graft-versus-host disease.

For more information on supportive care and needs that may arise for different population groups, see Appendices A, B and C.

Rehabilitation may be required at any point of the care pathway from the pre-treatment phase through to disease-free survival and palliative care (Cormie et al. 2017).

Issues that may need to be dealt with include managing cancer-related fatigue, coping with cognitive changes, improving physical endurance, achieving independence in daily tasks, returning to study or work and ongoing adjustment to cancer and its consequences.

Exercise is a safe and effective intervention that improves the physical and emotional health and wellbeing of cancer patients. Exercise should be embedded as part of standard practice in cancer care and be viewed as an adjunct therapy that helps counteract the adverse effects of cancer and its treatment.

Cancer survivors may find referral to specific cancer rehabilitation, optimisation programs or community-based rehabilitation appropriate and beneficial where available. Other options include referral to allied health supports through team care arrangements and mental health plans. Some community support organisations (cancer-related non-government, not-for-profit and charities) provide services to cancer survivors.

The lead clinician (themselves or by delegation) should take responsibility for these tasks:

• explaining the model of post-treatment care and the roles of health professionals involved in post- treatment care including the role of general practice
• explaining the treatment summary and follow-up care plan
• discussing the development of a shared follow-up and survivorship care plan where a model of shared follow-up care has been agreed
• discussing how to manage any of the physical, psychological or emotional issues identified
• providing information on the signs and symptoms of recurrent disease
• providing a survivorship care plan with information on secondary prevention and healthy living
• providing contact details of the care team involved
• providing clear information about the role and benefits of palliative care and advance care

The lead clinician should ensure regular, timely, two-way communication with the general practitioner about:

• the patient’s progress
• the follow-up care plan
• potential late effects
• supportive and palliative care requirements
• any shared care arrangements
• clarification of various roles in patient care
• a process for rapid re-entry to medical services for patients with suspected recurrence or if there are other concerns.

More information

Refer to Principle 6 ‘Communication’ for communication skills training programs and resources.