STEP 6: Managing relapsed or refractory disease

Detection

Most relapsed or progressive disease will be detected via routine follow-up or by the patient presenting with symptoms.

Treatment

Evaluate each patient for whether referral to the original multidisciplinary team is appropriate. Treatment will depend on the features of disease, previous management and the patient’s preferences.

Advance care planning

Advance care planning is important for all patients but especially those with advanced disease. It allows them to plan for their future health and personal care by thinking about their values and preferences. This can guide future treatment if the patient is unable to speak for themselves.

Survivorship and palliative care

Survivorship and palliative care should be addressed and offered early. Early referral to palliative care can improve quality of life. Referral should be based on need, not prognosis.

Communication

The lead clinician and team’s responsibilities include:

  • explaining the treatment intent, likely outcomes and side effects to the patient and/or carer and the patient’s

Checklist

  • Treatment intent, likely outcomes and side effects explained to the patient and/or carer and the patient’s GP
  • Supportive care needs assessed and referrals to allied health services actioned as required
  • Advance care planning discussed with the patient and/or carer
  • Patient referred to palliative care if appropriate
  • Routine follow-up visits scheduled