The lead clinician is responsible for:

• being open to and encouraging discussion with the patient about the expected disease course, considering the patient’s personal and cultural beliefs and expectations
• providing clear, simple and appropriate information to patients and their carers about possible acute events and ensuring 24-hour access to support
• discussing palliative care options, including inpatient and community-based services as well as dying at home and subsequent arrangements
• providing the patient and carer with the contact details of a palliative care service
• referring the patient to palliative care in the community according to the carer’s wishes