A lead clinician should be nominated to be the principal contact person for each NET patient, ideally by consensus among the multidisciplinary team. This lead clinician may change occasionally, depending on the patient’s circumstance, but will most often be a medical oncologist with experience in NETs.

The lead or nominated clinician should take responsibility for these tasks:

• discussing treatment options with patients and carers, including the treatment intent and expected outcomes, and providing a written version of the plan and any referrals
• providing patients and carers with information about the possible side effects of treatment, managing symptoms between active treatments, how to access care, self-management strategies and emergency contacts
• encouraging patients to use question prompt lists and audio recordings, and to have a support person present to aid informed decision making
• initiating a discussion about advance care planning and involving carers or family if the patient wishes
• ensuring active and ongoing communication with the patient’s GP.