Most high-grade glioma patients have incurable disease, but longer term survivors exist.

Patients may be discharged into the community and generally need to see a specialist for regular follow-up appointments.

Provide a treatment and follow-up summary to the patient, carer and GP outlining:

• the diagnosis, including tests performed and results
• tumour characteristics
• treatment received (types and date)
• current toxicities (severity, management and expected outcomes)
• interventions and treatment plans from other health professionals
• potential long-term and late effects of treatment and care of these
• supportive care services provided
• a follow-up schedule, including tests required and timing
• contact information for key healthcare providers who can offer support for lifestyle modification
• a process for rapid re-entry to medical services for suspected recurrence.

Patients may be discharged into the community and generally need to see a specialist for regular follow-up appointments.

Follow-up by the neurosurgeon should occur 4–8 weeks after surgery. Surveillance should include regular radiological assessment with MRI.

An occupational therapy home assessment is essential to ensure palliative patients receiving home-based care are safely managed.

Communication

The lead clinician’s responsibilities include:

• explaining the treatment summary and follow-up care plan to the patient and/or carer
• informing the patient and/or carer about secondary prevention and healthy living
• discussing the follow-up care plan with the patient’s GP.

Checklist